House votes to extend opportunities for more jobs, greater salaries to persons with disabilities

The House has voted to expand access to job opportunities and greater salaries to Missourians with disabilities by passing legislation that, backers say, will let those people simply live their lives.

Representative Melanie Stinnett (Photo: Tim Bommel, Missouri House Communications)

House Bills 970 and 971 make changes to the state’s Ticket to Work health insurance program within MO HealthNet.  The key provisions increase the limit to how much a person can earn before they would lose benefits under Ticket to Work and disregard up to $50,000 of a spouse’s income, relative to that limit.  It will also direct state agencies to have policies to recruit and keep employees with disabilities and create competitive ways to integrate them into workforces.

      The bills are carried by Representative Melanie Stinnett (R-Springfield), whose career in healthcare and as a speech-language pathologist has included a great deal of focus on serving the disabled community.  She said she is honored to sponsor this legislation.

      “It provides language that tells individuals with disabilities that we value them as important members of our community.  It allows these individuals to enjoy the opportunity to enjoy competitive, integrated employment by decreasing barriers imposed by government,” said Stinnett.

      She said these changes address outdated statutes that might have made sense in their time, but set limits that today are far too low. 

“The restrictions we have in place limited them from being able to utilize the degrees that they had and the skills and the trades that they had in our communities in an effective way, and with today’s work force crunch, too, we certainly don’t want to be limiting our workforce,” said Stinnett.

      The legislation has been offered in the House for about eight years.  One person who has carried it throughout that time, Representative Sarah Unsicker (D-Shrewsbury), said individuals with disabilities have Missouri’s lowest unemployment rate, largely due to discrimination and lack of accommodation and understanding.

Representative Bridget Walsh Moore (Photo: Tim Bommel, Missouri House Communications)

      “Disability is a natural part of the human condition that affects everybody at some point in their lives, some sooner than others.  The existence of a disability should not stop somebody from working and living to their fullest capacity,” said Unsicker.  “There are people right now with master’s degrees who cannot work because of services they need just to get out of bed and survive and be physically able to meet the day even if they are mentally able to do incredible work.  This will help them be taxpayers to the fullest extent of their ability.  This will help people get jobs.”

      Representative Bridget Walsh Moore (D-St. Louis) is a Missourian living and working with a disability and has also for several years sponsored this legislation.  She said some people in the disabled community choose not to get married because if they do while the current limits are in place, they will lose their health benefits under Ticket to Work.

In her own life, said Walsh Moore, “If anything were to happen to me, my husband makes over $60,000.  We would receive nothing from the state, zero support, and $60,000 for the two of us plus our child is not enough, especially with any medical needs I might have,” said Walsh Moore.

      She said individuals need the benefits provided by that coverage to function daily, to hold jobs, and to live with dignity.  She said she often thinks of a friend of hers who is in her 20s and has a master’s degree.

“She had to go to her job and say ‘Cap my salary at 40 grand.’  They wanted to pay her almost double that and she had to say no because even 80-thousand won’t make up enough to cover the assistance [she needs].  She is in a powered wheelchair so she has someone who helps her in morning and night, in getting in and getting out of bed and all that, and it’s not enough.”

“Missouri is losing out twice.  They’re losing out on her income tax, and that’s another 40-grand that would have gone into our economy,” said Walsh Moore.

      She said the provisions aimed at state agencies are intended to create a system that can be a model outside of government.

Representative Sarah Unsicker (Photo: Tim Bommel, Missouri House Communications)

      “As the system stands, we have sheltered workshops and we have full competitive employment and no bridge in between.  What this would do is basically set up the state as a model employer.  Basically, we will figure out a program ourselves.  All state departments will hire people with disabilities.  We’ll kind of work out the kinks, figure out the program ourselves, and then we can sell it to corporate America,” Walsh Moore explained.  “A lot of corporations I’ve talked to are very interested.  They like the idea, they just don’t know what that looks like, and so we’re taking that burden off of them and saying we’ll do it first and we’ll figure it out.”

      Stinnett, who is in her first year in the House, said this was one of the first issues she asked about taking up. 

      “It’s something that’s come up in my work life outside of this building and was a really important thing to me that I found disability legislation that I could get across the finish line that would make a difference for our everyday Missourians living with disabilities.”

      The House voted 151-0 to send the legislation to the Senate, and has amended it to other bills.

Missouri law now includes expanded therapy coverage for children with disabilities

More Missouri children and teenagers with specific developmental or physical disabilities will have insurance coverage for therapeutic care under a House proposal that became law this year.

Representative Chuck Basye (right) stands with Robyn Schelp (center), her son Nathan (in yellow) and their family. (photo: Tim Bommel, Missouri House Communications)

The language, included in Senate Bill 514, expands Missouri law that mandates coverage for therapy for children with autism spectrum disorder.  It includes physical, speech, and occupational therapies.  It will apply to plans renewed or enacted beginning January 1.

It was sponsored by Rocheport representative Chuck Basye (R), who said estimates placed the number of children this would impact at between 5,000 and 6,000.

“It was the last thing I ever thought I would get behind because I do not have anybody in my family that has a developmental disability,” said Basye.  “My brother-in-law is blind … that’s not really a developmental disability but that played a role in it.”

Basye said when he met Robyn Schelp, President of Missouri Disability Empowerment, and her 11 year-old son Nathan, who has a genetic disorder, he heard their plight and thinking about his brother-in-law put it into context.

“Bob had a lot of struggles but he ended up being very, very successful in his life because he got resources he needed at a very young age,” said Basye.

Basye also developed a special bond with Nathan, which we wrote about in March.

Schelp worked in the Capitol for three years, often with Nathan at her side, pushing for this legislation.  She said the law will now help children who have a broad array of conditions.

“The ones you’re familiar with; Downs syndrome, CP, MS, but it’s also going to apply to kids like my son, whose diagnoses are so rare that you’ve never even heard of them.  It’s any developmental disability,” said Schelp, “Which is really one of our goals, is that we start thinking of disabilities inclusively; that we don’t pick and choose who gets funding, who gets the services, but that we make sure that every child with a disability gets what they need to be successful.”

Legislators heard that making therapies more available to children when they are young makes those therapies more effective, and the benefits are seen in other aspects of their lives.

“Just speech alone, speech and language, the ability to communicate your needs is so important for day-to-day functioning, so it gives them that ability just to be independent and to function in day-to-day life, and it gives them confidence to go up and engage with people, so that’s huge, but it also helps them academically,” said Schelp.  “This is a big picture thing.  We’re not talking just, ‘Oh, great, now he can say the S sound.’  We are talking, he can now go and engage in his daily life with other people, and the same can be said for occupational therapy and physical therapy.”

Making such therapies available to children earlier in life can also lead to cost savings for families and the state.

“For example, speech, some children need help swallowing.  They will aspirate.  If they get that therapy then great, they’re going to be able to swallow properly, and if they don’t they might end up with pneumonia and   end up in the hospital,” said Schelp.  “There are a lot of health consequences that come when kids aren’t getting the therapies that they need.  Even just the ability to communicate your needs can keep you healthier and safer.”

Schelp said it is difficult for her to think about how different Nathan’s life might have been if this law had been in place when he was growing up.  He was limited to one session of each type of therapy a week, early in his life.

“Had we have had this he could’ve started getting speech therapy three times a week at the age of 2 or at the age of 3.  We had to wait until Nathan was 9 before he could start getting those therapies.  Just the progress he’s made in the last two years … I just think if he would’ve had that when he was 2 and 3, and early intervention when the development is so crucial, where might we be today?” said Schelp.  “If we would’ve had just a solid foundation of speech and language therapies at the beginning to help him, I don’t even want to think about where we could be today, but he went until the age of 9 not able to get, fully, the therapy that he needed.”

Schelp went from being so, as she put it, “out of the loop” in state politics she had to look up who her state representative was.  She encourages others to be willing to lobby for the changes they want or need in government.

“You really can do this, and if you don’t do it, it may not get done,” said Schelp.  “People don’t know what they don’t know, and if you don’t share your story and let [legislators] know what’s happening, they’re not going to be able to change anything.”

“People will listen if you talk to them.  I think we tend to think they won’t listen so we don’t even try, but they will listen … and there are more issues that, now, we’re talking on because we’re realizing we can do this, and if we work together we can get it even farther; we’ll be stronger.”

All 50 states have an autism mandate.  This legislation made Missouri the third state to expand that to cover all developmental and physical disabilities.

Basye’s legislation passed out of the House with broad support, 138-4.  That bill, House Bill 399, was eventually vetoed by Governor Mike Parson (R) because of an issue with another measure that was amended to it, but the language became law as part of SB 514, which was signed into law July 11.

Schelp’s organization has other issues that it’s working on and Basye said he would be working with her on a least one of them.